In recognition of SMA Awareness Month, Live RhysStrong – along with the international community – spends the entire month of August spreading awareness of Spinal Muscular Atrophy (SMA) by hosting and attending events, encouraging government to adopt resolutions, flooding social media with posts relating to SMA and educating others. While considered a rare disease, at least 1 in 50 people are SMA carriers. And yet most people have either never heard of or never will hear of this life changing disease until a loved one is diagnosed. Every month, but most especially in August, Live RhysStrong invites you to join us to help spread awareness of SMA.
Check out the calendar of events to learn more about how you can help in August or click here to learn how to help throughout the year.