Welcome to Team Live RhysStrong!
Cure SMA is the number one family support organization for those affected wtih Spinal Muscular Atrophy (SMA). They have been supportive since our son Rhys was diagnosed and are still very supportive today, 3 years after we lost hm to the disease.
SMA is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. But there’s great reason for hope. We know what causes SMA and what we need to do to develop effective treatments.
Cure SMA has invested $57 million in research. We’re getting closer and closer to an FDA-approved therapy, with 17 ongoing drug programs—and six of those are now in clinical trials. That's a big deal!!
They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.
Joining our team is easy! Just click on this link and follow the steps!
Thank you again for your personal gift to support our efforts to fund vital research and family support programs for those affected by SMA, especially our very own Rhys!
Monessa & Blaise