Our goal is to increase visibility of Spinal Muscular Atrophy, help raise funds for research and help families affected by this physically, emotionally, and financially taxing disease. We dream one day there will be a world where SMA does not rob babies of their futures.
The Live RhysStrong Foundation is a 100% volunteer organization. Every penny raised goes right back to our mission to serve the SMA community. 1 in 10,000 babies are affected with this disease. And while SMA undoubtedly takes the lives of infants much too soon, an SMA diagnosis can come still later in life. While there currently is no cure, a treatment was approved on December 23, 2016 - a Christmas gift like no other. By supporting this organization, you perpetuate hope that one day we WILL find a cure so that babies like Rhys can live long and strong lives. Help us educate and donate. Inspire others to follow your lead so that they too can make a difference in this world for this community. These babies are counting on US!