The Live RhysStrong Foundation was founded in memory of Rhys Anthony Santiago, who was diagnosed with Spinal Muscular Atrophy (SMA) when he was just 5 weeks old. The Live RhysStrong foundation took flight the same day Rhys grew his angel wings—August 26, 2013.

In his 55 days he inspired others to help in any way they can, and his inspiration continues to burn bright. We are a 100% volunteer organization currently entirely funded by donations.

Download our brochure.


Download our SMA info card.


Take a look at events from SMA Awareness Month.